Posted by: gilbert ®
08/04/2007, 12:40:47
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hi gilbert again and to respond to that yes it feels good to talk to someone else that has this condition is very good. in my case my mom has this condition and one of her co-workers and her husband has it also, so thats help us all talking about it. cause realy its hard for someone that doesnt know about our condition to understand what we go thru. one last thing that helps me cope with this is hughing a child wether its your own or a grandchild during the time when pain is unberable. so like to hear what type of pain you feel and when you find it to hurt more and so forth. thanks
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