Posted by: emma somerville ®
09/23/2005, 15:05:22
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my daughter erin is 11 years old and has recently been diagnosed with occular myasthenia. She is currently taking steroids every other day and we can see an improvement in her eyes but she still has double vision. She is finding it very hard to deal with and it breaks my heart to watch her go through this. Hoping that there may be someone out there who could share their experiences with us as she feels so alone at the moment. I listen to her and try and allay her worries but at the end of the day i cannot make it better for her and that is heart breaking.
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